From the Charleston Post & Courier ...
Musician Recovers from Brain Tumor
by David Quick
Local musician Mac Leaphart urges awareness of brain tumors as part of
the Medical University of South Carolina’s Brain Tumor Action Month
Click here to read the entire article.
No Monthly Meetings this Summer
Since we are about to go into summer season, and this is traditionally a slow time of year for the support group due to travel and such, I have decided to put a hold on the group for a couple of meetings. In this time, I will be trying to revamp the group format and line up some speakers and new ideas for the group. Our attendance has been waning recently, and I am looking at ways to try and boost the number of patients that attend meeting. Please let me know if this causes a problem for anyone. I will e-mail soon and let you know when group will resume.
Finger Foods after the Vigil Service
We are arranging for some finger foods to be available after the vigil. The reason we went with this rather than a dinner is because the vigil ends at 4:30, which seems a little early for dinner. Also, at this point, we only have 4 RSVP’s for the vigil service. So, we are not sure how many we will actually have. Finger food seems a bit easier when we are unsure of the numbers….
MUSC Brain Tumor Action Month
April 30- May 18, 2012
Stop by the 1st-floor lobby for free educational information, buy a T-shirt, and enter the drawing (registration not required).
Monday, April 30 (11 a.m. - 2 p.m.) - Brain Tumor Action Fair - MUSC Horseshoe
Please visit the vendors listed below (registration not required):
1. Amedisys Hospice/Home Health Nursing, Physical Therapy, Occupational Therapy and Speech Therapy
2. American Cancer Society Hope Lodge
3. Apria healthcare-Durable Medical Equiment (wheelchairs, hospital beds, walkers, canes, Bedside commodes, etc)
4. BeWell Home Care Services (Home health private aids) and Lutheran Hospice
5. Coram Specialty Infusion Services
6. Healthsouth Acute Rehab
7. Integrative Cancer care
8. Fuzzy’s BBQ
9. Genotech Pharmaceuticals
10. Heartland Hospice
11. Heartland Sub Acute rehab in West Ashley
12. Hope House-another lodging resource in the Charleston area
13. Hospice Care of America
14. Hospice care OF SC
15. Hospice of Charleston
16. INfuscience Infusion Services
17. Interim Health Care-Home Care, HH Nursing/Aids
18. Intramed Plus Infusion Services
19. McPhail Chiropractic Services
20. Med-Caire, Inc: respiratory and therapy equipment and services, and a complete line of medical equipment and supplies.
21. MUSC Prescription Assistance
22. MUSC Education Table on Brain Tumors
23. Piedmont Hospice
24. Riverside health and rehab
25. Roper Acute Rehabilitation Hospital
26. SC Advocates for epilepsy
27. Sharon Schuler’s Designs
28. Sipada Designs
29. Southern Bling
30. Southern Care Hospice
31. T & T Original Kettle Korn
32. Taco Boy
33. The Palms of Mount Pleasant-Assisted Living, subacute rehab, Independent Living
34. Therapy 4 Seniors-outpt and Home rehab
35. Trident Head Injury Support Group
36. Raffle Table
37. The 3 Dudes Band
38. Pie Throwing area
39. Hospice Care of SC
40. Interim Healthcare
41. 41. Piedmont Hospice
42. Allcare Living Services
Mayor Riley and Mayor Swails for the ribbon cutting.
Wednesday, May 2 (noon - 1 p.m.) - "Why Seizures Occur in Brain Tumor Patients"
MUSC Ashley River Tower, Conference Room 1119 (registration required)
A lecture presented by MUSC's Epilepsy Specialists: Gabriel Martz, M.D. and Leonardo Bonilha, M.D, Ph.D.
Thursday, May 3 (4 - 5 p.m.) - Brain Tumor Vigil Service
MUSC Hollings Cancer Center Healing Garden (registration required)
Please join us in support of those in need of healing and in remembrance of those who are no llonger with us.
Friday, May 4 (noon - 1 p.m.) - "Nutritian & healthy Living for Brain Tumor Patients"
MUSC Baruch Auditorium, Conference Room QG103 (registration required)
A lecture presented by Outpatient Oncology Dietitian Michael Stafford, RD, CSO, LD.
Saturday, May 12 (6:30 p.m. - ?) - "Benefit Concert & Silent Action"
Tickets are $10 in advance through etix and $15 at the door.
Thursday, May 17 (5:30-7:30) Fast Rounds:
Answers to Questions We Forget to Ask When Diagnosed with a Brain Tumor
Marriott Hotel, 170 Lockwood Boulevard, in the Crystal A Room (registration required)
There will be alcoholic/nonalcoholic beverages, along with appetizers served at this event.
Cost: Free,
Panel Speakers:
1. Paul Falkowski: Integrative Cancer Care. How Oncology Massage Therapy is beneficial for the patients diagnosed with a Brain Tumor
2. Gracie Atkinson, RN: Amedisys Home Health. How a Home Health nurse can decrease the number of clinic appointments you have (IV Antibiotics, wound care, lab work)
3. Sundi Herring, American Cancer Society Hope Lodge. What resources are available at Hope Lodge.
4. Beth Horton, Therapy 4 Seniors. Do you need Home Health Physical or Occupational Therapy?
5. Dawn Troublefield, Chamberlin Edmonds. Should you apply for Social Security Disability and/or Medicaid? How do you do this?
6. Polly McCann, LMSW, MUSC. I have been hospitalized. Do I need a case manager to help with Discharge needs?
7. Pierre Giglio, MD, MUSC. Is chemotherapy a good option for a Brain Tumor?
In addition: There will be two separate tables set up in the room. The Vocational Rehabilitation Center for the State with have some resources for individuals interested in Vocational rehab and The HELP line table (Personal Emergency Response System) will have resources and information regarding this service.
Friday, May 18 (7:00 p.m.) Brain Tumor Awareness Night at the Charleston Riverdogs Game
The website to purchase seats at Joe Riley Stadium in support of Brain Tumor Awareness Night is now up and running. The date is Friday, May 18th and to purchase these tickets in our reserved section, please click here to visit the portal link. We will be in section 206 (behind home plate) and ticket prices are discounted at $8 each. The password is 'may18'. Fun extras: Our dear friend Steve Bridges will be throwing out the first pitch at 7:05 p.m. and the game will end with a fireworks display! We are also hoping for a few of our own to sumo wrestle again this year but I'll know more as the date approaches. I hope that you can make this event as I enjoy seeing everyone and always appreciate your caring support.
Click here to visit musc.edu/neurosciences/btam for more information, register for free events or buy concert tickets.
